First off, in case I haven't said it loud enough for y'all to hear through the window, BIRKENSTOCKS SO TOTALLY CURED MY PLANTAR FASCIITIS!
Kay. On to new business.
Saw the good neurologist Friday. The one we waited for 6 months to get in with. Worth every minute of that wait. LOVE this man. First time we've had an appointment where I felt like the doctor was truly intent on evaluating and diagnosing the problems with my precious Bear.
And boy, oh boy was there some diagnosing going on.
In a nutshell:
1) Sensory Processing Disorder - the one we already knew about, and what brought us to him in the first place
2) Speech and Language Processing Disorder - not exactly a surprise, but still disappointing to hear (but on the bright side, probably improves his chances of getting continued therapy through school district once he ages out of EI)
3) Possibly: Autism... wait and see. There are enough red flags to prevent him from ruling it out altogether (unlike the previous neurologist, who laughed it off). But, he's far from a clear cut case. His social development is delayed and we are under orders to watch it closely. In time, if he catches up socially we're in the clear. If not, doctor will revisit possibility of autism.
4) Possibly: ADHD... wait and see. Too young to rule in or out, and could just be the sensory seeking behaviors that are often dead ringers for ADHD. Doctor and I agree medication is not appropriate for him. Doc said when he's school age, if he really, truly can't function, we can consider meds as a last resort. So, back burner on this one.
5) Possibly: Non Epileptic Seizure Disorder - Bear has little spacey, unresponsive spells. I thought they were infrequent, but now it sounds like I just don't see them as often because he's more independent (i.e. playing in next room) or with another adult. After talking with all his therapists, every single one told me it's something they've noticed and been wanting to discuss with me. But, might not be seizures - because of his sensory disorder, it could be his brain putting him in a self-imposed time out due to sensory overload. EEG scheduled for early June to learn more.
Oh, and he's getting the surgery to put tubes in his ears next Monday.
Aaaaand... oh yeah! Today, my endo declared recent blood test results "Excellent!" My inner overachiever is hoping he puts a gold star on my chart.
With all this, I somehow managed to squeeze in an appointment for my chronically owie shoulder. Doc gave me 3 choices:
1) Ice & ibuprofen & time (because that's worked so well thus far!)
2) PT
3) Cortisone shot
I'd kill for the time (& room in my budget) for more sessions with my awesome PT. But that's just not gonna happen right now. So, I opted for the cortisone shot.
Bear was with me, making things interesting.
I can now say I've taken a 4 inch needle in my right shoulder while wrangling a Bear with my left arm. I is a Mommy ROCK STAR.
My doc (marathon guy) half jokingly suggested I could still do the tri in 3 weeks if I floated on my back and didn't use my right arm to swim. I don't think he'd bat an eye if I actually DID try that. But it doesn't feel like the right thing to do, seeing as how my shoulder's been painful enough to wake me up at night and I'm resorting to giant needles because that's somehow the easy way out. There's still the race in August - that's feels like plenty of time for my shoulder to recover.
And now... I'm off to do Bear's pre-surgical hospital check in call. Good times.
(Oh, and that whole Mean Mr. Meaniehead Husband suggesting my bike speeds weren't legit thing? I. WIN.)
3 comments:
Hope all goes smoothly for your little guy!
We deal with sensory issues here as well. We have more senses involved than just taste/oral. There are textures he can't stand to touch. We also deal with the sense of motion being "off" this has meant riding in a car/stroller/shopping cart can be very irritating. He doesn't have much sense of hunger either. Oh, and then there is sound... he shrieks. He can actually hit a pitch that vibrates my eardrum. He can clear a room with that shriek, no doubt. I tell you this so you can watch for other sense involvement as well.
Then there is the seizure disorder, for us it resolved itself on its own at about age 10 months. There is hope but it is a long road and as you know the earlier the diagnosis the better the prognosis. Good luck!
Yes, good luck - sounds as though some worthwhile progress is being achieved, on many fronts.
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